Connor's Courage Benefit Run
We want to thank everyone for the love and support shown to our organization and the Shipp
family during Connor's Courage Benefit Run on March 7th, 2020. The attendance and support
was overwhelming. As we continue to calculate numbers and results, we will post the updates
on the actual total money raised, runners in attendance, and total people in attendance at the
We can't thank Andelin Family Farm enough for partnering with us and providing such an
incredible venue for this event. They worked tirelessly to ensure we had the perfect conditions
for a successful run/walk for our event.
Those who wish to continue providing support to the Shipp family can donate in the following ways:
You can also contact a Pacific Dental Services Reno, Sparks, or Carson City location and get more information on how you can save money on your dental work by making a donation to Connor's Courage. Find a location on their website and ask about
Donate for Smiles for all the details!
If you want to see pictures and coverage of the event check out our Facebook and Instagram accounts https://m.facebook.com/friendsofconnorinc or https://www.instagram.com/friendsofconnorinc/. We will also continue
to give updates on Connor and Friends of Connor Inc. through those platforms as well.
Your support to make Connor’s last days as comfortable and fulfilling as possible are sincerely appreciated.
We want to thank the following sponsors for their overwhelming support of Connor's Courage Benefit Run:
Ibarra Industries United Site Services, Reno/Sparks Zen Den Pets, LLC Metzner Timing Trans-Action Realty 500
Java Ship Coffee Reno Running Company Make-A-Wish Foundation Jake Capdeville, Farmers Insurance
Just Cheeky Face Painting Cosplay for Kindness Sani-Hut Company, Inc. Northwest Reno Smiles Think Ink and Thread
Connor Shipp is a fun-loving and compassionate 9-year-old boy who likes Cub Scouts, Spiderman and Nerf guns.
On September 7, 2019, Connor was diagnosed with a very rare genetic disease called Adrenoleukodystrophy or ALD. This brain disorder destroys myelin, the protective sheath that surrounds the brain’s neurons-the nerve cells that allow us to think and control our muscles. Childhood ALD most severely affects boys between the ages of 4 and 10. Because it is so rare it is not a disease that is screened at birth.
Connor’s type of ALD has no cure and will result in his physical and cognitive decline until it claims his life within six months to three years.
Friends of Connor, Inc. is an all-volunteer 501(c)(3) non-profit organization formed to benefit Connor. Our purpose is to raise funds to support Connor and his family, as well as raise awareness of ALD.
Even with good medical insurance the level of care that Connor receives and will require is resulting in astronomical expenses. Some of those uninsured expenses include costs such as airfare for continual trips to Primary Children’s Hospital in Salt Lake City, retrofitting adaptations to Connor’s family’s home and ultimately funeral expenses.