Connor's Courage Benefit Run
Friends of Connor, Inc. is sponsoring Connor’s Courage Benefit Run. This is a 2K walk and 5K run to be
held on March 7, 2020 at Andelin Family Farm, 8100 Pyramid Way, Sparks, NV. Connor’s health is rapidly
declining so we need volunteers and sponsors now to make this event successful.
Those wishing to get more information and/or participate in the run/walk please visit the
registration page by going to:
Those who simply want to donate funds can do so on the Connor Shipp GoFundMe page:
Those that wish to donate materials or want to contribute in another way are encouraged to contact
Friends of Conner, Inc. through one of the contact methods listed in the Contact Us section of this page.
If you would like to be a volunteer for the event, click here or on the Volunteer Registration button to be taken to
our volunteer registration page.
If you would like to share this event on social media, please like us on Facebook or follow us on Instagram.
Entities that would like to be sponsors for Connor's Courage Race visit the Corporate Sponsors page for more information.
Your support to make Connor’s last days as comfortable and fulfilling as possible are sincerely appreciated.
-- Andelin Farm is a family friendly venue. Drugs, alcohol, profanity, weapons and disorderly conduct are prohibited.
We accept credit cards. We have a no pet policy --
Connor Shipp is a fun-loving and compassionate 9-year-old boy who likes Cub Scouts, Spiderman and Nerf guns.
On September 7, 2019, Connor was diagnosed with a very rare genetic disease called Adrenoleukodystrophy or ALD. This brain disorder destroys myelin, the protective sheath that surrounds the brain’s neurons-the nerve cells that allow us to think and control our muscles. Childhood ALD most severely affects boys between the ages of 4 and 10. Because it is so rare it is not a disease that is screened at birth.
Connor’s type of ALD has no cure and will result in his physical and cognitive decline until it claims his life within six months to three years.
Friends of Connor, Inc. is an all-volunteer organization formed to benefit Connor. (An application for 501(c)(3) status is pending.) Our purpose is to raise funds to support Connor and his family, as well as raise awareness of ALD.
Even with good medical insurance the level of care that Connor receives and will require is resulting in astronomical expenses. Some of those uninsured expenses include costs such as airfare for continual trips to Primary Children’s Hospital in Salt Lake City, retrofitting adaptations to Connor’s family’s home and ultimately funeral expenses.